Fall Pictures of the Kids

I can't believe that it has been a whole year since we took these. Too bad I just barely got them into picture frames and displayed in my house! Oh time goes so fast!

I decided to try my luck again as the photographer. The shoot lasted exactly 20 minutes and then we were DONE!! This picture of Charlotte was the last one we took!

She is growing up so fast....some times too fast!

One of the things I LOVE about this little girl is her sweet heart of gold. She is an absolute delight. She is a huge helper with Charlotte. Just tonight she helped me unload the dishwasher, make dinner, set the table, and helped me clean up....and payed attention to FHE. She is fabulous when she wants to be!

This little girl melts my heart. I think she receives 500 kisses minimum daily from her mommy. She is SO incredibly patient. She loves to be a part of the family. She wants in on all of the action and doesn't want to miss a thing. She loves to watch her brother and sister entertain her (I do too, they are ridiculously good at it!) She gives awesome kisses and crawls like a champion. She is completely capable of walking but she hasn't quite developed the confidence. I'll give her a few more weeks! She sleeps through the night and it is the highlight of my morning to get her out of her crib...pure bliss!

I am the luckiest mother in the whole world to be continually granted time to spend with these beautiful children. It truly is a gift...one that I will cherish forever.

We made it through the night...

Two nights actually. We are now on our 7th day with out seizures. I wish there was some way to express the joy I feel. I truly feel we are experiencing a miracle. I am waiting to hear from both our Doctors to know what the plan is moving forward. We are truly blessed. Love you all!

Update

For some crazy reason I can not get my photos to upload from my camera to my computer so this is just a quick update for those who were wondering ...(grandma!)

We are doing well!!! I am knocking on wood as I write this post... there is always tomorrow but I have learned to focus on today and well today was good. Today was the 4th day with out a single seizure!!!!!! I know it sounds crazy but it is true. Quinn has been doing so incredibly well. His little personality is just thriving. He is happy and energetic, loving and rambunctious... and I wouldn't have it any other way. Somedays I have to pinch myself to remember that I am not dreaming. I think we are actually progressing. I hesitate to say we are "there" but I think we are getting closer.

For those of you who are following a little bit more of the details...

We have been doing the B12 shots for one month now. It's hard to know what is actually working. I have been giving the shots to him every three days and yes it is getting a little bit easier. I still get a twinge of anxiety before I stab my child but then it subsides and I get to forget about it for three days. The problem: a couple of weeks ago I started to notice a difference in Quinn. He was doing better in the day (still having some sort of seizures but better) but he was having the grandmal seizures during the night...and more frequently. I started to notice that these seizures were happening following the B12 shot. For some reason the past 3 shots we have given him, he goes in to a grandmal that same night. SO... I let the Dr. know my observations and we are on trial right now. He suggested we space the last shot 5 days (instead of 3) from the next shot. So that puts us to tonight. I just finished giving him a shot. So we will see if he has a grand mal tonight. If he does we will know if it was the B12. It kind of sucks this whole trial and error thing. Can you imagine..." just wait to see if your child goes in to a seizure and then we will know if it is the problem." Yep, that is how we do things around here. Not much else we can do. But it is all okay. We are moving in the right direction and for that I am so so so grateful!

We also started Quinn on a new medication. Because the grand mals were becoming so frequent we decided to try something new. He is on a very low dose of a drug called Lamictal. This one has some scary side effects that we will have to watch out for.

So it is kind of hard to know if Quinn is responding to the medication or the B12. But the bottom line is he is responding!

So we will see what happens tonight... and as for me, hopefully I can sleep!